Monday, January 31, 2011

The Pain Game, Part 1

Day 1


I have this recurring dream:
I am in a small cave wrapped in tangerine peels and sandalwood scents. A kettle is gently tittering on the fire. Someone is coming up behind me. I cannot see her. She is rubbing oils on my arms and whispering secrets into my hair. I cannot hear what she is saying.


***


When I was 12 years old I started my period. It arrived as two brown streaks on my underwear during an episode of Magnum PI. My Dad was sprawled out on the couch, one leg hiked up on the back like a very long fat cat and the other curled up like its lame cousin. This was my Dad's nightly ritual: Cocoa Cola, TV, couch, sucking his teeth. That, I could count on. Intermission to declare my passage from maidenhood to womanhood was definitely not an option. Since my mom was working late, I absconded to the bathroom to wedge a toilet paper roll between my legs and study the folded brochure in her tampon box.

The next night it was Falcon Crest and a passed note to my bleary eyed mother who was still in her work uniform. It read: I think I started my P. The news did not exactly bring with it fanfare, streamers, or presents wrapped in red paper with very mature ribbons. Instead she promised, through taut lips, to take me to the store in the morning - which would have been day three of my now full flowing period. (To be fair, I should mention here that we lived in a small farming village in Germany and a trip to the store was an hour and a half away. Also, I should clarify that there was only one English speaking channel called AFN, American Forces Network, in which shows like Magnum PI and Falcon Crest were favorites despite the fact that most people in the United States had seen these episodes seven years prior.) Once again, I found myself in the bathroom with my underwear around my ankles trying to figure out the right angle of tampon insertion - which at the time felt like an awakening to a secret women's torture ritual.

Day three of my period started with a long drive and then my mom pushing me out of the car, forcing me to navigate the sanitary napkin aisle solo. This was mortifying. Here I was in a military PX (post exchange), a 12 year old nubile, trying to read boxes and boxes of menstrual pads while a legion of jarheads lurked about. I grabbed a box and ran out the door. When I got home and unwrapped the old-lady-scented plastic package I realized that these pads were about the size and width of a mark (small German paper bill). I'd need about seven of these stuck on my underwear mosaic style to actually do anything. This time when I took my mom's tampon box into the bathroom, I was determined. I inserted one halfway up and walked around like a seasoned cowboy for three excruciating hours.

Day four and the bleeding slowed down. At school I got a pass to the bathroom every 30 minutes to check that I wasn't leaving a bloody trail. The toilet paper was government issue - did I mention I went to military school - which means dispensed in very small thin folded rectangles. To wipe on an ordinary day, one would have to pull about 75 of these things, one at a time. On extraordinary days, it was a 10 minute exercise in tedious repetition. Consequently, most of the girls in my school either walked around with personal rolls of toilet paper hidden in their book bags or suffered from carpal tunnel syndrome. By evening, the bleeding had reverted back to the brown streaks. This did not seem right. Had I injured myself by jabbing my innards with the tampon or pulling it out before it was ready? At the time, it seemed like it had caused serious internal bleeding. Was I dying?  While my family watched MacGyver, I fiercely consulted the Merck manual (the source of my later developed hypochondriasis) for clues of my imminent death. I found something about kidney disease and frantically wrote a new note to my mother: I have brown streaks. Do I have a kidney disease? Renal failure? To this, my mother and her sliver mouth, flicked the paper aside and resumed her ironing and TV watching. We'll talk about it later. That's all she said.

My biological workings were as accurate as a Swiss made watch - every 28 days I started my period at 9 am. Only during daylight savings did I fail to bleed exactly on the hour. By the third month, I had secretly taken up tampon wearing. My best friend, Mary, finally showed me how easy a tool this was. On a non-period day, she pulled down her pants, swiftly plunged a tampon in, answered about 50 questions ranging from "can you poop with a tampon in," to, "are you sure you don't feel a thing?" and then with as much panache whisked it out and popped it into a used Coca Cola can.  After Mary's demonstration, I stole tampons from my mom's medicine cabinet and only used the tiny stick-ons for back-up. About six months into my tampon use, I confessed to my mom that I had been using them. Her reaction was a merry-go-round of anger, disappointment, nonchalance, and back to anger. I don't exactly remember what she said, but I remember going away from that conversation feeling like the town whore for inserting something up my "body," the word my mother used for vagina.

Nevertheless, I continued my rebellious tampon using and bled happily for the next seven years. I was a non-complainer and never let a bloody day stop me from competitive running, swimming, or playing tennis and soccer (and German soccer is way more brutal than American soccer - even the scrappy soccer I played in Texas did not compare to the broken ribs, smashed fingers, and concussions I suffered at the feet of fussball). I bled like a guy with a bloody nose, no problem.




***

I am sitting on a soft nest of straw and silk hairs. I am having my period and there is no shame in this blood staining. Through a small opening in the cave, I see the even coolness of moonlight. I am laughing and the moon is laughing. I wake up from these dreams with a terror in my chest. I have been crying in my sleep and in the morning my eyes will be swollen. What was it she was telling me? A secret? 

Sunday, January 16, 2011

Light as a Feather

It is Sunday and I am on the downhill slope of pain. I am elastic with happy--expanding in the ribs and taking it all in.

Today, I ate two chocolate truffles.

Rebel.

I am happy and tumbling towards green pastures of life with resounding laughter and youth. If only for this moment, let me be blind to all the edges--let the next moment retreat back into the dark woods. Let me just be here, this moment.

Later, I will tell you a story about the beginnings of endometriosis: whiskey, lust, dirt, blood. Later, a story about the beginnings of spirit guides: hospital, pneumonia, vomit, haunted rooms.

For now, a conversation with Seth, my spirit guide:

Me: Why do I have endometriosis? Genetic probability? Karma? Spiritual lesson?

Seth: And what do you believe? And what do you want out of this experience? Where is the portal hole for you? Will you walk into pain? Will you believe that there in infinite sweetness in this place that can feel so cold to you? Can you breathe in a place that promises nothing--that holds no light for your deliverance? What does it mean for you, dear s, to be here in ribs with a heart that's still beating? What do you want?

Me: I don't know what I want? Maybe softness, maybe a hand to hold, maybe someone to tell me that it's going to be okay. I want to collapse in some wise lap and be pet on my hair. I want to lay here in silence and watch the light crescent over the earth. I just want a full breath in peace.

Seth: And, what will you do now to have it? Will you ask someone to touch their hand to your face and tell you, "Sweet love, it will be okay?" Will you sit in a quiet place and let that be enough? Can you stop seeking and see that peace is not so far away. What is endometriosis? Maybe, a fair question is, what is endometriosis for you? Perhaps, a sweet salvation?

Me: Yes. Maybe. But, what do I do? I am so afraid of pain. It terrifies me. I want time to stop on days like today. I just want to be here, frozen, heels in the ground. I want to resist the next moment that might change the way I feel in my body. I don't want to feel pain.

Seth: It is not easy, s. It is not easy to lay the body down for this wind called pain. But, you cannot fight the weather. You cannot demand the sun to shine and the rain to hide. You can warm yourself and be kind to yourself. You can prepare for a storm. This is your relationship to pain right now. You cannot stop a force of nature just because you will it to disappear. It is a wild force of nature, pain. You must be wise, prepare and not fear. How to do this? Ask yourself, what do you need in a storm? The shelter of strong. Find this in human companionship. You need the warmth of fire. Find this in the fire of your heart. Write stories. Read stories. Laugh. Build fires. Sit in blankets. Give to yourself. You see, when you stop wishing pain away, you can use your efforts to prepare. When you are prepared, you can sit. And when you sit, you will listen to the wind. What is the wind pain telling you?

Me: Is the wind telling me to write?

Seth: The wind is telling you a story. Be light in your body and the wind will take you. Let the pain take you to a new place--an unexpected place. No resistance. Lay your head down. The wind will carry you.

Me: I'm scared.

Seth: But, the pain is not. Give your fear to pain and watch it burn into ash.

Friday, January 14, 2011

Bones Are Heavy

It's Friday and all day today I have been hovering between bones and clouds--lightheaded and rootless. If I were in my pajamas in bed watching Netflix movies, then who cares. But Friday is a work day and there are rituals of work to live by. Shower. Dress. Eat. In the office by 10. Professional. I am a healer. I work with spirit guides. All communication channels must be clear. People are paying good money for this.

I am sitting across from my client.
She is timid, shy.
She watches me for clues.
Am I listening? Am I hearing her? Can I feel her?

I am trying.
But, I am nauseous again today.
I feel my face flush.
My stomach rumbles fiercely.

Are you okay? she asks.

I don't know. How can I know? What tests can I take? What proof is there to be had? I don't know.

I started a new treatment. It's a chicken and vegetable (yeah, that's it) diet called the Eubiotic Diet. It's supposed to help decrease the inflammation in my body so that I am not in pain every second of my life. So far, I feel spacey and hungry and pissed off. I want butter. I want hard alcohol. I want pizza because, damn it, it's Friday. I ease my discomfort by spending a small fortune on the few gourmet permutations of chicken and vegetables at the grocery store. There aren't many and so I convince myself that coconut is a vegetable and buy frozen coconut pops.

I like to see myself as an adventurer with an intrepid palate. These days, all the adventure I get is whether or not I can get to my office ten blocks away without having to make a wild u-turn home for the toilet.

I want to save face.
I tell her, "Yeah, I'm fine. It's just the energy moving through me."
But,
I am hungry.
I am so hungry.

Marco. Polo.


I have endometriosis.

What that looks like is a ghost. You cannot see anything.

There is no sore to pick. No wound to bandage. No scar to prove anything.


This is what it feels like:

The slowest cold slice of a very long sword.

I feel each cell divided.

Something deep and unknown is being cut open.

I feel myself dividing and I do not know what will become of me.


This is also what it feels like:

FUCK YOU

I HATE THIS

THIS HURTS SO MUCH

WHAT WILL HAPPEN TO ME

Then, a calm. A cry. A hurt. A betrayal.

Endometriosis is a ghost disease. I cannot see it, but I can feel it occupying me. It’s a vague sense of mystery and confusion. I cannot hear what it is trying to tell me. It’s a language I have not learned.

Dear Endometriosis,

What are you trying to tell me?

Love, s

I am creating this blog in the hopes of learning the language of endometriosis. This is a dialogue—one part of the cell shouting across the chasm to the other. Somewhere, there is truth.

Marco.